Doctors to Consult

NATIONAL INSTITUTES OF HEALTH (NIH)

LONGTERM STUDY OF MELORHEOSTOSIS

Please click on the “NIH Melorheostosis Study” button on the left to read more about the

ongoing NIH Melorheostosis Study.

MAYO CLINIC SEEING MELORHEOSTOSIS PATIENTS

The Mayo Clinic continues its dedication to the care of patients with melorheostosis and is available for consultation.

We are grateful to the Mayo Clinic for their interest in working toward a better understanding of this disease with the goal of effective evaluation and better treatment options for melorheostosis patients. We also believe the Mayo Clinic’s vast capabilities to collect and analyze data can foster medical research working toward effective treatments and help find a cure. For more information, click here.

MELORHEOSTOSIS ASSOCIATION MEDICAL PANEL

MEMBERS SEEING MELORHEOSTOSIS PATIENTS

Members of our Medical Panel have authorized the listing of their names and contact information as available to see melorheostosis patients. For more information, click here.

Physical Therapy

For patients seeking information related to physical therapy for melorheostosis patients, Dr. Ryan Winters, who has spoken at past Melorheostosis Association conferences, has agreed to be available for consultation. He can be reached by phone: 303 341-0369 or email: winte403@regis.edu.