Name : Sherry Stutts
E-mail : sherry.stutts@ehtexas.com
Adult: 66 years old
Location: Livingston, Texas
Area(s) affected: Left ankle and leg
Personal History:
My name is Sherry Stutts and I am 66 years old. On December
8, 2012, I had just finished mopping my kitchen. I was walking along the edge
of the floor in house shoes when I slipped. I fell on my back and my left leg
went under the dining table and my foot hit the huge pedestal in the middle of
the table. Immediately my left foot and ankle began to swell. My husband
wanted to take me to the emergency room. Being the nurse that I am, I opted to
“wait until morning”. I elevated my foot but was miserable all night. The next
morning we went to Memorial Hospital ER in Livingston, Texas. When my x-ray
came back on my left ankle I was told I had a severe sprain. They applied a
brace, gave me hydrocodone for pain (which I did not take), told me to keep it
elevated for the next couple of days and it should be fine. Well, it did not
get any better. I called and made an appointment with an orthopedist. Dr. Shaw
had an x-ray made of my left ankle area. I then went back to the exam room I
had been sitting in. In a few minutes the x-ray tech came in and said Dr. Shaw
wanted an x-ray of my leg up to my knee. I thought nothing about it. As I was
sitting in the exam room waiting for Dr. Shaw, I heard him talking to an
associate in the hallway. He was telling him that he had never had a case of
this (which I learned was melorheostosis) in his years of practice. He also
said it was very rare and he had to look it up on his computer. The next thing
I heard was his knock on my door. He sat down and began telling me about what
he had seen on my x-ray. He showed me what he had researched on his computer
and ran a copy off for me. He said that some forms could be malignant so he
sent me for an MRI which came up negative. He sent me to physical therapy for
6 weeks. The therapist had never hear of melorheostosis either. I was an
enigma! The therapy did help to strengthen my ankle some. I take Ibuprofen for
the pain. I do not know if the melorheostosis is in any other of my long
bones. I have arthritis and have decided to go to a rheumatologist in the next
month or so to see what kind of arthritis I have. My left ankle becomes tender
at times and is misshapen. I have always had leg pain. When I was little it
was “growing pains”. As a young mother it was “on my feet too much”. In my
older years “arthritis”. After what I have read about others who found it at a
very early age, I feel blessed to have gotten to 63 before I was diagnosed with
it. I live in a rural area and do not know anyone with this disease. Thanks
for letting me share my story. Sherry Stutts, 4033 FM 3152, Livingston, TX
77351.